From the category archives:
Why yes, I went and mimicked my post from – holy shit – almost exactly 15 years ago. I started Tremfya and I am… not feeling hopeful? <<Wrote this a week earlier, more thoughts below…>> I’m feeling resigned. Maybe a tiny bit of hope. Yes, a little. Because why would I do this otherwise? I’m […]
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I need a little stream of consciousness half-hour so mentally setting my timer at 11:15. Okay, 11:17. The last few days, weeks, have been jam-packed. They’ve been thoughtful, fun, emotional, hard, joyful. Basically life. And I’m trying to have a little perspective on it. Taking up 45% of my brain is Sam. Her hair loss […]
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I got the most wonderful letter from insurance last week which was that they would not be covering my Pentasa medication anymore. My Pentasa medication that one of my resolutions was to take faithfully every single day, 4x a day, 8 freaking pills. To pat myself on the back, I have done that super awesomely […]
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Three years ago I got very excited about having a scale that syncs to my phone, tracks my water weight, BMI, muscle mass, etc. I got marketed to by FitTrack and ordered it. I enjoyed it! Was it perfectly accurate? No. Still cool though. The ap quickly switched over to HumeHealth (I think they got […]
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We found an amazing doctor on Thursday after what can only be described as an adventure. First, I love to add in context: we were so done with Sam’s old doctor, Park. I mean, where do I even start? She had a reputation for being “not great at bedside manner” and “super busy” which apparently […]
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I feel off balance. I feel upset. I don’t know if I should be angry or not but I feel angry. At someone but also myself. Or maybe it’s just grief again. There is a sort of grittiness that I fall into when I have tasks to do. I had 5 meetings that morning but […]
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I was almost going to just throw this on a Wordless Wednesday post but nah… it made me laugh too much. I use my weekends to do longer 20 or 30 minute weight workouts and really just sit in my gym area and sweat out all my anxiety, my frustration, my thoughts… and embrace the […]
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Sam wanted to go try a workout class so we went to Orange Theory together. I have always heard about it from friends and had no idea of what it entailed but was up for the challenge. I was pleasantly surprised that it seemed to incorporate most of what I am currently doing in my […]
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I spent the first day of the year with my family celebrating Christmas late due to a Covid outbreak the week before. I spent the second day of the year at St. Joseph’s Hospital – Center for Breast Imaging getting a biopsy of a 1.5cm growth that had slightly changed from two years before. The […]
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Over the years many people talked about the wonders of weight lifting. I complained about it. Said no way. I didn’t have anything against weight training, per say, it just seemed like a waste of time and just really hard to do. I didn’t know how to properly lift weights. I wasn’t sure how many […]
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Three and a half years and I finally got a positive! On my Covid test, that is. The day our house got tented for termites. And we had moved into my Mother-in-law’s two-bedroom condo for two nights (while they were out of town luckily!) And it was our 19th wedding anniversary. I had a lovely […]
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I made it to the store, searched and searched for the spice aisle, and spent forever hunting down Turmeric. Even more importantly, I hunted down the safe spice Turmeric that isn’t paired with starch or other additives. (I went with Simply Organic.) I struggled home in 75 degree weather. Let the spice sit in my […]
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I follow the Specific Carbohydrate Diet, which is a diet that was built to help people with Crohn’s and Colitis Disease. We have to use fantastical adherence in following this diet to make our stomach’s happy. The goal, of course, is to stay off the harmful medication that are used to treat those diseases, and live a […]
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I wanted to give an update on my progress from my adipose stem cell replacement for Crohn’s Disease and Interstitial Cystitis. I’m going to be talking about poop, so if you don’t want to read on, please feel free to skip this! I feel better. I do. It seems incredible that I would just feel […]
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Getting a stem cell procedure is so new and exciting that everyone wants to know how I’m feeling! Well, a few exciting things have happened… – I’m gaining the ability to read minds – My invisibility skills are improving – I’m working on my flying ability but I think I might need a broom… Ha […]
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