I was going to just post a Wordless…
But I’m on a plane….
and my 4th of July post is still in draft mode, meandering and sentimental… maybe not sentimental but nostalgic. Or just thinking.
Okay, had to ask AI what I was feeling, ha. Reflective matches.
And I had my 2nd Tremfya infusion… my “loading dose” – I have one more – and I wanted to honestly think about how it’s treating me.
Luckily, I got to be infusion buddies with my best girl.
My first dose made me super tired that evening and the next day. Oops, going back to read what I wrote…
Good news – I drank a crap ton of water this time! I was also on a contentious conference call for work and was Emma was literally wrapping the rubber band around my arm to start the IV and was able to do it with no problems. (I hung up right before!) I think I finally said, I’m not in a position to have this conversation. It all worked out. Sheesh.
From last month: “my head feels hot and I’m super tired”
Yep, that happened again. I want to say I felt like I was hit by a truck but it was more like a moped. Annoying and a little hard. I was not thinking straight.
I had a 5:30am meeting but I SWEAR I looked at my calendar and only saw 6am. So when I set my alarm for 5:34am… yep, totally missed it. But I’m forgiving myself for that one. Feel a little bad but I wasn’t leading it and it was a good excuse. And I woke up around 4:15am but thankfully fell back asleep, which I hardly ever do.
I do thank the half Tylenol PM for that one. But it worked.
The whole day I was a little… eh. But I had 6 hours of meetings, had to be in the office, HAD to get my first spray tan – LOLLLL – and then got to hang out with Dax for 30m and shop at Target with him while Krys had a super duper important final interview for a fancy new promotion.
And then finish PACKING… but yes, super tired. Bleah feeling.
But OTHER than that, it’s really… fine.
It’s fine.
I did have a change in bowel moments when the Pentasa stopped completely. More constipation than anything but still fairly normal.
I am sticking to my SCD diet but not religiously. I had a piece of brownie at Ang’s birthday brunch last Sunday. Freaking heaven.
Had a bunch of desserts in the grad trip. They definitely were not SCD approved.
But mostly, I’m still staying true. I think this way of eating continues to support my gut health, vaginal health, hormones, and skin, so I’m sticking with it.
So… the Tremfya definitely kicks my butt a little. I really shouldn’t be flying off and traveling after these things but hey, can’t stop life. As I’m on a plane… It’s 48 hours later and while my head hurts, I think that’s just motion sickness from the ride to the airport and being on a plane.
But overall… Tremfya hasn’t really affected me. I’m cautiously optimistic.
